The multiple linked data sets in the Utah Population Database (UPDB) provide a rich resource of information for genetic, epidemiological, demographic, and public health studies. The extensive family histories available allow the identification of familial clustering of disease or outcomes. These diseases may include cancers diagnosed through the Utah or Idaho state registries, causes of death identified through death certificates, and reproductive outcomes identified through birth certificates or any other disease identified through clinical records and linked to the genealogy.

A researcher may provide the staff with identifying information on a set of individuals. UPDB staff can then determine the degree of relatedness of these individuals. This may aid in identifying potentially interesting families to study.

Studies typically incorporate the kinship or pedigree structure as part of the research design; however some data sets, such as births and deaths, can be studied independently of the family history records.

All research projects require Institutional Review Board (IRB) and Resource for Genetic and Epidemiologic Research (RGE) approval.

The Utah Resource for Genetic and Epidemiologic Research (RGE) administers access to the specific sets of records through a review process of the project proposal. All research projects require Institutional Review Board (IRB) and Resource for Genetic and Epidemiologic Research (RGE) approval.

Contact:
Jahn Barlow
(801) 581-6351
jahn.barlow@hsc.utah.edu

RGE Website

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