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|
Coordinator & Phone Numbers |
What we |
Purpose & goals |
Who is eligible |
Clinic schedule |
Total enrollment |
|
FMRC |
Marybeth Hart (801) 585-0595 or toll-free (866) 378-4840 |
FMRC Total body skin exam, blood draw, questionnaires, & optional elements (biopsies, mole mapping, etc.) |
1. Study phenotype (mole) changes over time within families 2. Better understand p16 melanoma susceptibility gene 3. Find new genes in previously studied families that do not have the p16 mutation 4. Provide free skin screening, individualized recommendations, and education |
Certain families studied in our previous melanoma research at the University of Utah, with priority given to family members who enrolled in past study; children of enrolled family members when space is available |
One Thursday per month Four to five participants per clinic |
As of Dec 31, 2002: 69 participants enrolled |
|
HRMS |
April Alexander (801) 585-0443 or pager 339-4324 |
Total body skin exam, blood draw, questionnaire |
1. Identify new melanoma susceptibility genes 2. Refer selected families to FMRC for more detailed work-up 3. Provide free skin screening, individualized recommendations, and education |
Certain new families with multiple cases of melanoma, with priority given to family members who have had melanoma |
One Thursday per month 10 to 15 participants per clinic |
As of Dec 31, 2002: 49 participants enrolled |
|
MRR |
Michelle Robinson (801) 585-0595 or toll-free (866) 378-4840 |
Brief questionnaire, agreement to be contacted about future research studies |
1. Track high-risk melanoma patients or family members who are not eligible for or interested in FMRC or HRMS 2. Refer patients to studies for which they may be eligible 3. Provide free education |
Anyone with a personal or family history of melanoma or dysplastic nevi (atypical moles) |
Enrollment on an on-going basis |
As of Dec 31, 2002: 50 participants enrolled |